EMBARC
The European Bronchiectasis Registry
The European Bronchiectasis Registry
The largest prospective registry of bronchiectasis globally with an initial report of 16,963 patients from 28 countries has now been published. It describes the frequency of different aetiologies, microbiology, treatments, and disease burden in terms of lung function, exacerbation frequency, hospitalisations and disease severity.
In most cases, the cause of bronchiectasis is unknown. Where aetiology has been confirmed, postinfective bronchiectasis is the most common.
Bronchiectasis severity as determined by the Bronchiectasis Severity Index (BSI) also shows geographical variation.
Microbiology data shows Pseudomonas aeruginosa and Haemophilus influenzae outnumber all other pathogens isolated from patient samples.
EMBARC is a pan-European network committed to promoting clinical research and education in bronchiectasis, through sharing of protocols, research idea and expertise. Central to this project is the creation of the European Bronchiectasis Registry, a collaboration open to all investigators around Europe caring for patients with bronchiectasis.
The European bronchiectasis registry is now open for recruitment. To register to participate, please email contact@bronchiectasis.net
Its easy to register to take part:
After providing some basic …
4-6th July 2024
Dundee, Scotland
https://www.world-bronchiectasis-conference.org/2024/
Join us and contribute to the World Bronchiectasis Community meeting planned in Dundee from 4th …
EMBARC is an open group and free to join.
For more information contact info@bronchiectasis.eu
Sign up at the registration page
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